Looking for patients interested in testing a "symptom observation" app
There is a new application developed by a pharmaceutical company (Alnylam), which is supposed to help with the observation of symptoms and their changes, and in the discussion with the doctors during the regular consultations, to facilitate the decision about necessary changes in the therapy or accompanying measures.
The idea of such a tool is great. However, I have not yet used this app myself and would like to gain experience with it in the next two months.
Who would like to join this test? Please register via Info@amyloidosis-austria.at and take part in the test. After 2 months, we will send you a questionnaire to find out your personal impressions. We will summarise the results and then invite you to a joint zoom to discuss the results.
I would be very happy if many of you participate - for the benefit of all of us!
Info Event Innsbruck
Please be advised that our annual info event in Innsbruck will be taking place on 22.09.2022 at 16:oo in the Medizinzentrum Anichstraße 35, Seminar Room 3, 1, lower level. This differs to the information provided in the patient letter. We are looking forward to receiving your registrations.